CDC Grand Rounds: National Amyotrophic Lateral Sclerosis (ALS) Registry impact, challenges, and future directions

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Affiliates Paul Mehta [1], D. Kevin Horton [1], Edward J. Kasarskis [2], Ed Tessaro [3], M. Shira Eisenberg [4], Susan Laird [5], John Iskander [4]

 

[1] Environmental Health and Surveillance Branch, Division of Toxicology and Human Health Sciences, Agency for Toxic Substances and Disease Registry, CDC
[2] Cynthia Shaw Crispen Chair, ALS Research, Department of Neurology
[3] A person living with ALS
[4] Office of the Associate Director for Science, CDC
[5] Office of the Associate Director for Communication Science, CDC
Journal Morbidity and Mortality Weekly Report
Summary This is a summation of the progress the National ALS Registry has achieved, including: updates on the Biorepository, the most recent prevalence estimates, and the success of recruiting patients for research using the Registry
Link to paper Find the paper here!