von Willebrand Disease (VWD)

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Table 3. HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD), Data Reported from 1/1/2012 through 3/31/2023

HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD)
VWD (n=32336)
Type 1 Type 2 Type 3 Type other
and Type
unknown
# (%) # (%) # (%) # (%)
# of patients 25154 (100) 3491 (100) 512 (100) 3179 (100)
Age (years) <2 240 (1) 53 (2) 9 (2) 77 (2)
2–10 4505 (18) 586 (17) 69 (13) 669 (21)
11–19 10671 (42) 956 (27) 82 (16) 1126 (35)
20–44 7117 (28) 1074 (31) 218 (43) 818 (26)
45–64 1819 (7) 472 (14) 90 (18) 285 (9)
65+ 802 (3) 350 (10) 44 (9) 204 (6)
Sex Male 8175 (32) 1424 (41) 250 (49) 1004 (32)
Female 16979 (68) 2067 (59) 262 (51) 2175 (68)
Ethnicity Hispanic, Latino/a, or Spanish origin 4386 (17) 515 (15) 48 (9) 612 (19)
Not Hispanic, Latino/a, or Spanish origin 20159 (80) 2891 (83) 450 (88) 2351 (74)
Unknown 609 (2) 85 (2) 14 (3) 216 (7)
Race American Indian/Alaska Native 149 (1) 26 (1) 6 (1) 25 (1)
Asian 642 (3) 108 (3) 38 (7) 89 (3)
Black or African American 1773 (7) 318 (9) 44 (9) 262 (8)
Native Hawaiian or other Pacific Islander 91 (0) 12 (0) * * 8 (0)
White 20691 (82) 2791 (80) 398 (78) 2362 (74)
More than one of these 264 (1) 48 (1) * * 48 (2)
Unknown 1544 (6) 188 (5) 19 (4) 385 (12)
Insurance Status Insured 24553 (98) 3241 (93) 499 (97) 3048 (96)
Uninsured 320 (1) 190 (5) * * 42 (1)
Unknown 281 (1) 60 (2) * * 89 (3)
History of HCV infection Yes 155 (1) 112 (3) 99 (19) 18 (1)
No 19415 (77) 2771 (79) 375 (73) 2198 (69)
Unknown 5584 (22) 608 (17) 38 (7) 963 (30)
History of HIV infection Yes 67 (0) 13 (0) 8 (2) 8 (0)
No 19387 (77) 2853 (82) 463 (90) 2224 (70)
Unknown 5700 (23) 625 (18) 41 (8) 947 (30)

† The HTC Population Profile contains 41 transgender individuals. For confidentiality purposes, the number of transgender patients is too small to report by year or other characteristics. Transgender patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts greater than zero but less than five have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.