Appendix B: Family History Workshop Agenda
A Report for the
Office of Genomics and Disease Prevention
National Center for Environmental Health
Centers for Disease Control and Prevention
Prepared by Susan Baker Toal, MPH
August 19, 2002
- Back to the Main Document
- Appendix A: Participant Roster
- Appendix B: Agenda
- Appendix C: Worksheets
- Appendix D: Selected Bibliography
MORNING SESSION Moderator: Maren Scheuner, Cedars-Sinai Medical Center |
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8:30 a.m. | CDC Welcome…………………………………………………………Muin Khoury Director, Office of Genomics and Disease Prevention, CDC |
8:40 a.m. | Introduction to the Workshop and Participants……………Maren Scheuner Cedars-Sinai Medical Center |
9:00 a.m. | Background and Evaluation Process (ACCE)…………………Paula Yoon Office of Genomics and Disease Prevention, CDC |
9:15 a.m. | Family-Centered Approaches to Understanding…………….Sharon Kardia and Intervening in Coronary Heart Disease University of Michigan |
a. Presentation – 20 minutes
b. Discussion – 10 minutes
9:45 a.m.Family History of Colorectal Cancer……………………………… Bob Millikan
University of North Carolina, Chapel Hill
a. Presentation – 20 minutes
b. Discussion – 10 minutes
10:15 a.m.BREAK10:30 a.m.Can Family History of Type-2 Diabetes to be used…………Karen Edwards
as a Tool for Public Health? University of Washington
a. Presentation – 20 minutes
b. Discussion – 10 minutes
11:00 a.m.Family History as a Potential Tool in Asthma Prevention…..Wylie Burke
University of Washington
a. Presentation – 20 minutes
b. Discussion – 10 minutes
11:30 a.m.LUNCHSESSION I. ANALYTIC VALIDITY
Moderator: Robin Bennett, University of Michigan1:00 p.m.Documenting the Family Health History: An…………. Kristen Peterson Oehlke
Overview of Available Tools Office of Genomics and Disease Prevention, CDC1:15 p.m.Family History as a Tool for Risk Assessment in………….. Hoda Anton-Culver
Public Health Research and Practice and In Preventive Medicine University of California, Irvine1:35 p.m.Group Discussion – IdentifyKnowledge Gaps and Describe Studies Needed to Assess Analytic ValiditySESSION II. CLINICAL VALIDITY
Moderator: Marta Gwinn, Office of Genomics and Disease Prevention, CDC2:15 p.m.Family History Collection and Pedigree Analysis……………… Maren Scheuner2:35 p.m.Family History of Cancer and Cancer Screening in the………. Ingrid Hall
General Population National Center for Chronic Disease Prevention and Health Promotion, CDC2:45 p.m.Do Americans Know Their Family History of ……….. Joelyn Tonkin
Asthma and Heart Disease? Office of Genomics and Disease Prevention, CDC3:00 p.m.BREAK3:15 p.m.Group Discussion – Identify Knowledge Gaps and Describe Studies Needed to Assess Clinical ValiditySESSION III.A CLINICAL UTILITY
Moderator: Christopher Friedrich, University of Mississippi Medical Center4:00 p.m.Population Versus High-Risk Prevention Strategies: ……….. Steven Hunt
Do We Need to Choose? University of Utah4:20 p.m.Association Between Family History of Colorectal Cancer……….. Jill Morris
and Preventive Health Behaviors in Women – United States, 1997
Office of Genomics and Disease Prevention, CDC4:35 p.m.Using Decision Analytic Method to Assess the Utilityof Family History for Public Health and Preventive Medicine……….. Anupam Tyagi
National Center for Chronic Disease and Prevention and Health Promotion, CDC4:50 p.m.Discussion5:15 p.m.ADJOURN
8:30 a.m. | Overview of the First Day……….. Maren Scheuner |
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SESSION III.B CLINICAL UTILITY Moderator: Christopher Friedrich, University of Mississippi Medical Center |
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8:45 a.m. | Can Knowledge of Family History Affect Behavior Change:……… Janet Audrain Using Family History of Breast Cancer as an Example? Univ. of Pennsylvania |
9:15 a.m. | Group Discussion – Identify Knowledge Gaps and Describe Studies Needed to Assess Clinical Utility |
10:00 a.m. | BREAK |
SESSION IV. ETHICAL, LEGAL, AND SOCIAL ISSUES (ELSI) Moderator: Wylie Burke, University of Washington |
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10:15 a.m. | Using Family History to Achieve Public Health Goals:……….. Wylie Burke Ethical, Legal, and Social Issues University of Washington |
10:45 a.m. | Group Discussion –Identify Knowledge Gaps and Describe Studies Needed to Assess ELSI |
11:15 a.m. | What We Have Learned: A Research Agenda……….. Muin Khoury |
11:45 a.m. | Closing……….. Maren Scheuner |
ADJOURN |