Appendix D: Selected Bibliography

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image of tree with people, family records, and a dna strand

A Report for the
Office of Genomics and Disease Prevention
National Center for Environmental Health
Centers for Disease Control and Prevention
Prepared by Susan Baker Toal, MPH
August 19, 2002

 

Selected Articles on Family History Collection and Evaluation
  1. Williams RR, et al. Health Family Trees: A tool for finding and helping young family members of coronary and cancer prone pedigrees in Texas and Utah. Am J of Public Health (1988);78(10):1283-1286
  2. Ponder M, et al. Family history and perceived vulnerability to some common diseases: a study of young people and their parents. J Med Genet (1996);33:485-492
  3. Silberberg J, et al. Comparison of family history measures used to identify high risk of coronary heath disease. Genetic Epidemiology (1999);16:344-355
  4. Hunt SC, et al. A comparison of positive family history definitions for defining risk of future disease. J Chron Dis (1986);39(10):809-821
  5. Williams, RR et al. Usefulness of cardiovascular family history data for population-based preventive medicine and medical research (The Health Family Tree Study and the NHLBI Family Heart Study). Am J Cardiol 2001;87:129-135
  6. Higgins M, et al. NHLBI Family Heart Study: objectives and design. Am J Epidemiology (1996);143:1219-1228
  7. Bennet RL, et al. Recommendations for standardized pedigree nomenclature. Am J Hum Genet (1995); 56:745-752
  8. Gilpin CA, et al. A preliminary validation of family history assessment form to select women at risk for breast or ovarian cancer for referral to a genetics center. Clin Genet (2000); 58(4):299-308
  9. Rogers J and Holloway R. Completion rate and reliability of the self-adminstered genogram (SAGE). Fam Pract (1990);7(2):149-51
  10. Filkins K and Kerr MJ. Occupational Reproductive Health Risks. Occupational Medicine: State of the Art Reviews (1993); 8(4):744-749
  11. Saito T, et al. A novel approach to assessing family history in the prevention of coronary heart disease. J Epidemiol (1997); 7:85-92
  12. Emery J, et al. Computer support for interpreting family histories of breast and ovarian cancer in primary care: comparative study of simulated cases. BMJ (2000); 321:28-32
  13. Coulson AS, et al. RAGs: a novel approach to computerized genetic risk assessment and decision support from pedigrees. Methods Inf Med (2001); 40(4):315-322
Online Articles on Family History
  1. “Blue Eyes and Long Lives” Provides a basic approach for documenting family health history suitable for the lay person interested in family history or genealogy.
  2. Family Health History: Medical Genealogy. Provides links to articles on collecting and interpreting family health information.
  3. Family Medical History. Provides information on family medical history, what to collect, some sources, why it is important, inheritance patterns and conditions associated with certain ethnic backgrounds.
  4. Tree of Knowledge: Putting together a family medical history. Provides some basic guidance on collecting information for a family history.
  5. Internet Genealogy. A set of lessons on genealogical topics, including a module on genograms and family medical histories.
  6. Knowing your Family Medical History. Methodist Health Care System, Houston, TX. Article on the importance on family medical history for an individual’s health.
  7. Compiling your family medical history. Mayo Clinic Health Information. Provides tips and suggestions for compiling a family medical history.
  8. Your Family’s Medical History: Why It’s So Important. Lee Phillips, MD, Personal MD. Provides an overview of some of the chronic conditions can run in families, clues for collecting family information and advice on sharing the information with health care providers to develop disease prevention plan.
  9. Population-based estimates of the prevalence of family history of cancer among women. by Ingrid J. Hall, Wylie Burke, Steven Coughlin, and Nancy C. Lee.
Books on Family History
  1. Genetic Connections — A Guide To Documenting Your Individual And Family Health History by Danette L. Nelson-Anderson, RN, BSN, and Cynthia V. Waters.
  2. How Healthy Is Your Family Tree?: A Complete Guide to Tracing Your Family’s Medical and Behavioral Tree by Carol Krause
  3. Family Diseases: Are You at Risk? by Myra Vanderpool Gormley
  4. Your Genetic Destiny: Know Your Genes, Secure Your Health, Save Your Life by Aubrey Milunsky, MD, DSc
  5. The Practical Guide to the Genetic Family History by Robin L. Bennett, MS, CGC