Participating HTCs
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Note: The HTCs acknowledged here reflect the regional structure and project organization in effect under cooperative agreement number U27DD0001155-02 from the Centers for Disease Control and Prevention (CDC) at the time the report was created. Centers in the Health Resources and Services Administration regions of New England and Southeast participate in Community Counts under regional subdivisions, as listed below.
Data for this report were collected by care providers in HTCs at the following institutions:
New England
Region I
Terri Russo
Doreen Brettler, MD
Yale University School of Medicine
New Haven, CT
Maine Medical Center
Scarborough, ME
Dartmouth-Hitchcock Hemophilia Center
Lebanon, NH
Vermont Regional Hemophilia Center
Burlington, VT
Boston Hemophilia Center- Children’s Hospital
Boston, MA
Boston Hemophilia Center- Brigham and Women’s
Boston, MA
Region II
Susan L. Miller, MS
Christopher Walsh, MD
The New York-Presbyterian / Weill Cornell Medical College Comprehensive Center for Hemophilia and Co
New York, New York
Puerto Rico Hemophilia Treatment Center
San Juan, PR
Rutgers, The State University, Robert Wood Johnson Medical School
New Brunswick, NJ
Icahn School of Medicine at Mount Sinai
New York, New York
Newark Beth Israel Medical Center
Newark, NJ
Mid-Atlantic
Lisa Maiale-Howell, MSS, LCSW
Regina Butler, RN
Children’s National Medical Center
Washington, DC
Georgetown University Hospital
Washington, DC
University of Virginia Hospital
Charlottesville, VA
Virginia Commonwealth University
Richmond, VA
Children’s Hospital of the King’s Daughters
Cardeza Foundation Hemophilia Center
Norfolk, VA
Hemophilia and Thrombosis Center of Central Pennsylvania
Hershey, PA
Hemophilia Center of Western Pennsylvania
Pittsburgh, PA
Charleston Area Medical Center
Charleston, WV
Johns Hopkins University Medical Center
Baltimore, MD
Penn Comprehensive Hemophilia and Thrombosis Program
Philadelphia, PA
Southeast
Region IV-N
Steve Humes, MM, MPH
Alice Ma, MD
Wake Forest University School of Medicine
Winston-Salem, NC
University of Kentucky Hemophilia Treatment Center
Lexington, KY
East Carolina University
Greenville, NC
Palmetto Health Richland
Columbia, SC
East Tennessee Comprehensive Hemophilia Center
Knoxville, TN
Vanderbilt University Medical Center
Nashville, TN
St. Jude Children’s Research Hospital
Memphis, TN
University of North Carolina at Chapel Hill
Chapel Hill, NC
Region IV-S
Robert H. Gillespie, MSW, LCSW
Christine Kempton, MD
Nemours Children’s Clinic
Jacksonville, FL
Children’s Hospital at Memorial University Medical Center
Savannah, GA
Augusta University Adult Hemophilia Treatment Center
Augusta, GA
University of Mississippi Medical Center Hemostasis and Thrombosis Center
Jackson, MS
University of Alabama Birmingham Medical Center
Birmingham, AL
St. Joseph’s Hospital Center for Bleeding and Clotting Disorders
Tampa, FL
Emory University Hemophilia Program Office
Atlanta, GA
Augusta University Pediatric Hemophilia Treatment Center
Augusta, GA
All Children’s Hospital Hemophilia Treatment Center
Petersburg, FL
Great Lakes
Travis Tussing, JD
Roshni Kulkarni, MD
Susan Lerch
Henry Ford Hospital Adult Hemophilia and Thrombosis Treatment Center
Detroit, MI
West Michigan Pediatric at Bronson
Kalamazoo, MI
Hemophilia Clinic of West Michigan Cancer Center
Kalamazoo, MI
Eastern Michigan Hemophilia Treatment Center
Flint, MI
Helen DeVos Children’s Hospital
Grand Rapids, MI
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
Nationwide Children’s Hospital Hemostasis and Thrombosis Center
Columbus, OH
Northwest Ohio Hemophilia Treatment Center
Toledo, OH
Dayton Children’s Hospital
Dayton, OH
Indiana Hemophilia and Thrombosis Center
Indianapolis, IN
Michigan State University Center for Bleeding Disorders & Clotting Disorders
East Lansing, MI
UHHS Cleveland
Cleveland, OH
University of Michigan Hemophilia and Coagulation Disorders
Ann Arbor, MI
Northern States
Duane Herron, MPH
Joan Gill, MD
Danielle Leitner Baxter
Bleeding & Clotting Disorders Institute
Peoria, IL
Children’s Hospitals & Clinics of Minnesota
Minneapolis, MN
Hemophilia Outreach Center
Green Bay, WI
South Dakota Center for Blood Disorders
Sioux Falls, SD
Comprehensive Center for Bleeding Disorders
Milwaukee, WI
Great Plains
John Drake, RN, MSN
Deborah Brown, MD
Gulf States Hemophilia and Thrombophilia Center
Houston, TX
Louisiana Center for Bleeding and Clotting Disorders
New Orleans, LA
Oklahoma Center for Bleeding and Clotting Disorders
Oklahoma City, OK
Fort Worth Comprehensive Hemophilia Center
Ft. Worth, TX
Children’s Medical Center Bleeding and Thrombosis Program
Dallas, TX
Texas Children’s Hemophilia and Thrombosis Center
Houston, TX
Children’s Hospital of New Orleans
New Orleans, LA
The John Bouhasin Center for Children with Bleeding Disorders
St. Louis, MO
Mountain States
Susan Lattimore, RN
Michael Recht, MD, PhD
University of Colorado Hemophilia and Thrombosis Center
Aurora, CO
Arizona Hemophilia and Thrombosis Center at the University of Arizona
Tucson, AZ
Arizona Hemophilia and Thrombosis Center at Phoenix Children’s Hospital
Phoenix, AZ
Intermountain Hemophilia & Thrombosis Center Primary Children’s Hospital
Salt Lake City, UT
Washington Center for Blood Disorders at Bloodworks Northwest d/b/a Puget Sound Blood Center
Seattle, WA
The Hemophilia Center at Oregon Health & Science University
Portland, OR
Providence Sacred Heart Children’s Hospital
Spokane, WA
Western States
Judith Baker, DPH, MHSA
Diane Nugent, MD
Children’s Hospital Los Angeles
Los Angeles, CA
University of California, San Diego
San Diego, CA
University of California San Francisco
San Francisco, CA
Orthopaedic Institute for Children
Los Angeles, CA
Rady Children’s Hospital San Diego
San Diego, CA
Center for Comprehensive Care and
Diagnosis of Inherited Blood Disorders
Orange, CA
Children’s Hospital Oakland
Oakland, CA
City of Hope National Medical Center
Duarte, CA
Guam Comprehensive Hemophilia Care Program
Hagatna, GU
Valley Children’s Hospital
Madera, CA
Hemophilia Treatment Center of Nevada
Las Vegas, NV
Pages in this Report
- Highlights & Acknowledgements
- Background
- Methods
- Geographic Distribution of Registry Participants
- Registry Characteristics 2014
- Diagnosis
- Sex
- Age
- Race/Ethnicity
- Education
- Weight Status
- Health Insurance Coverage
- Health Insurance Coverage by Age
- Viral and Vaccination Status
- Use of Healthcare Services and Absenteeism
- Chronic Diseases, Conditions, or Surgical Procedures
- Technical Notes
- ›Participating HTCs