Appendices
Appendix E: Worksheet for capacity development
| Examples of potential partners | Surveillance | Referral | Prevention | Examples of potential roles |
|---|---|---|---|---|
| Ministries of health | X | X | X | Set policies and regulations for health-care services and delivery |
| Hospitals and, if applicable, hospital associations and clinics | X | X | Serve as data sources; referral sources | |
| Regional and local health departments | X | X | X | Serve as data sources; conduits to audiences for referral and prevention activities |
| Primary health centres and health-care providers | X | X | X | Serve as data sources and also as sources for prevention and outreach activities |
| Community health workers/ community health volunteers | X | X | X | Serve as potential data sources because, in many countries, these individuals are present at the delivery; provide prevention information |
| Congenital anomalies associations, foundations, and other nongovernmental organizations | X | X | Provide advocacy for congenital anomalies infrastructure at national and local levels; serve as dissemination channels for prevention activities and messages; potential sources for outcome data; serve as possible data sources | |
| International organizations | X | X | X | Provide advocacy, technical assistance and expertise |
| Medical schools/research agencies | X | Provide specialized laboratory services, such as chromosome analyses, or have clinics where individuals with congenital anomalies are seen; can help drive surveillance of congenital anomalies |