3.11 Data Collection/Management

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This section focuses on data collection and management. Valid and reliable data collection, storage, management and analysis are critical to congenital anomalies surveillance programmes.

Benefits

Possible responses:

  • Promotes high-data quality and secure data storage
  • Provides systematic collection of data
  • Provides ability to link congenital anomalies data with other available information for surveillance, research and prevention purposes
  • Facilitates timely dissemination of prevalence estimates to those who need to know
  • Allows reliable comparisons with data from other congenital anomalies programmes
  • Allows evaluation of the information that is sent by participating sites to the central surveillance system

Table of Contents

  1. Module 3: Introduction to Surveillance Approaches
  2. 3.1 Epidemiology
  3. 3.2 Population Coverage
  4. 3.3 Case Ascertainment
  5. 3.4 Case-Finding
  6. 3.5 Case Inclusion
  7. 3.6 Inclusion Criteria
  8. 3.7 Inclusion of Pregnancy Outcomes
  9. 3.8 Description Formats for Congenital Anomalies
  10. 3.9 Core Ascertainment Variables
  11. 3.10 Data-Collection Methods and Tools
  12. ›3.11 Data Collection/Management
  13. 3.12 Data-Management Protocol
  14. 3.13 Data Analysis
  15. 3.14 Data Dissemination
  16. 3.15 Evaluation Questions 3